Now I really don't like to complain, but I have a condition called Hypermobility Syndrome. Its quite rare, not serious enough to kill me but it is very painful and has some obscure side issues surrounding it.
Its mainly a connective tissue disorder, and I suffer terribly with my left knee, right hip, right shoulder and (more recently) right elbow and thumb. No idea why those joints in particular, but they are the bothersome ones.
One of the other side-effects got me yesterday, and that's the irritable bowel. Its been behaving itself for months now, maybe as long as a year, but I had a very sudden and violent attack yesterday and it really scared me. It was the first time I'd bled as a result (ew - shut it Fifi, you're turning everybody's stomach) and I was genuinely scared out of my wits about it. The doctor wasn't bothered though and prescribed Anusol (brilliant for the farmers) as apparently I had a fissure which he said will heal pretty quickly, but to go back if its not healed in a week. It seems better already.
Another thing it affects is the heart. I tend to get strong palpitations sometimes, and other times it seems to beat irregularly, and threadily, but then other times its normal and strong as an ox. That's because one main root cause of the condition is a problem with the parasympathetic nervous system, so control of unconscious body systems (like heart beat, digestion etc) can be affected, hence palpitations and irritable bowel.
I am seeing my doctor at the end of this month to try to get to see a Joint Hypermobility Syndrome specialist. The nearest one apparently is in Leeds, so its a fair way away from me, but nearer than London or Glasgow where the others are!
Having said that, I don't like to dwell on this illness, and have just started riding a motorbike in my determination to not let it get me down.
I'm only whingeing about it today because its been on my mind and telling you (whoever you are and wherever you are!) helps to get it off my chest and ease my mind somewhat.
But then that's the point of a blog, isn't it?!
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5 comments:
Dear FiFi,
Thank you for leaving such a nice comment about my needlebook. I'm not in the needlebook/pincushion swap but, since I was planning to make a needlebook for myself, I posted the links I had gathered. It was a coincidence that Rhonda Jean started the swap during my planning. I am a fan of her blog, too. :)
I'm sorry that you are suffering with JHS. It is something I researched a bit when I was trying to figure out what is wrong with me, although I came to the conclusion that I don't have JHS. I hope you can get the best treatment and live a somewhat normal life.
~Sabine
Thanks for your kind wishes Sabine. Most people have no idea what JHS is, so its nice to feel a little understood!
I hope you resolve your health worries and find out what is the matter. If I can help in any way in this respect, please, you only need to ask.
FiFi
Hi Fifi
Sorry to hear you're not feeling so well. One of the best things about simplifying is not feeling guilty about taking the time to cherish and look after yourself don't you think?
With that in mind I hope that lots of rest, good food and relaxation are on the cards for you and that you soon feel much better.
By the way, am now back from my hols and about to investigate how on earth to make you the most gorgeous bottle holder you've ever seen!
Take care
Wendy x
Hi Fifi,
Just conected to your blog from Rhonda's.Wasn't that the most eye opening program you have ever seen I havn't seen Hugh Fearnly one but I'll check out the pay T.V.
Sorry you arn't feeling well, I have never hrard of JHS I hope you are fealing better soon. Getting a motor bike would help lift the spirits though......I don't have a blog yet as I'm not sure how to go about it,but if you can set one up while busy at work surly I could work it out.
Keep safe and look after your self,
Mandy
Thanks for all your comments ladies :-)
Hi Wendy, welcome back! I hope you had a wonderful time in Normandy. I'm near finished making your water bottle holder - I'm just doing some finishing touches. I got a bit obsessed and couldn't stop knitting!! I hope you like it, and I hope you're not having difficulties in finding a pattern you feel comfortable making. Email me if you need any help or advice honey :-)
Mandy, Jamie's programme was originally on at around the same time as the Hugh F-W one, but where Jamie's prog was one night, Hugh's was a 3-part series. I believe a follow up show is coming soon to show the effects of the first programme, so if I spot it I'll do a post about it to alert anybody to watch it, and may even comment about it on Rhonda's blog to get to a wider audience. Blogging's easy enough - I've not got fancy bells and whistles on mine as I can't work it out, but I can get my words on to a screen and that's enough for me!
Thank you all for visiting xx
Speak soon :-)
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